The word Arthrogryposis literally means curved joint, implying that it is fixed or stuck in the curved position.
Arthrogryposis multiplex congenita put simply means curved joints in several areas of the body at birth.
Contractures are present at birth and in most children there are multiple contractures.
Help and support can be obtained from;
Tomcat Trikes in action
Arthrogryposis Awareness Day is every June 30. Also known as Arthrogryposis Multiplex Congenita, is a rare congenital disorder that is characterized by multiple joint contractures and can include muscle weakness and …
Interview with Dr. Harold van Bosse, orthopedic surgeon with Shriners Hospitals for Children-Philadelphia. This video is part 1 of 3 parts. Part 1: Introduction to Arthrogryposis; Part 2: Philosophy of Care Part 3: Treatment Options …
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when supporting a pupil with Arthrogryposis you will need to focus upon;
Seek advice from professionals to explore the adaptations that can be made in home and at school.
Students with arthrogryposis can be characterised by the internal rotation of hands, sloping shoulders, and long, tapering fingers. The position of the feet, hips and knees are variable.
Some students have two or three joints affected, all other joints are affected including the spine and the jaw.
Most students are within the normal cognitive range.
Arthrogryposis occurs in about 1 in 3,000 births.
Over 260 babies are born with arthrogryposis in the UK each year.
There are several reasons why Arthrogryposis develops in the womb;
Whizz-Kidz is a charity aiming to provide disabled children and young customised mobility equipment, training, advice and life skills.
This Charity provides equipment to children that is not available on the NHS. They also run Wheelchair training courses/ Mobility centres in Dagenham and Havering.
A UK wide charity providing advice, information and support to parents of all disabled children.
Here is a useful summary outlining who could apply and the criteria.
SERC / Newbridge School
Barley Lane Campus, 258 Barley Lane
Goodmayes
Ilford, IG3 8XS
SERC is a service and information centre brought to you by Redbridge.
