Redbridge SERC

Ataxia-Telangiectasia Disorder

Description

Ataxia-Telangiectasia (A-T) is a rare, childhood neurological disorder that causes degeneration in the part of the brain that controls motor movements and speech.

Telangiectasias (tiny, red 'spider' veins) appear in the corners of the eyes or on the surface of the ears/ cheeks, are characteristic of the disease, but they are not always present in early years of life.

Fact sheets

Training / Help

Further helps and support can be obtained from:

  • Newbridge Outreach
  • Physiotherapy
  • Occupational therapy

Videos

Screenshot for video: Tomcat adapted trikes

Tomcat adapted trikes

Tomcat Trikes in action

Screenshot for video: Faces of A-T (ataxia telangiectasia) 2010 Neuro Film Festival

Faces of A-T (ataxia telangiectasia) 2010 Neuro Film Festival

"This film has been entered into the 2010 Neuro Film Festival from the American Academy of Neurology Foundation at www.neurofilmfestival.com.

Screenshot for video: A-T awareness video

A-T awareness video

The A-T Children's Project is a non-profit organization that raises funds  aimed at finding a cure for ataxia-telangiectasia.

Learning Aids

Cooking aids

Cooking aids

Available from: Cooking aids

This link will take you to a great summary of adapted equipment to help students be independent in the kitchen. Cooking equipment Cutting and slicing Peelers, mashers and graters Cooking boards Weights Serving utensils

Frequently Asked Questions

Family Resources

Whizz Kids

Website: 
http://www.whizz-kidz.org.uk/
Description

Whizz-Kidz is a charity aiming to provide disabled children and young customised mobility equipment, training, advice and life skills.

This Charity provides equipment to children that is not available on the NHS. They also run Wheelchair training courses/ Mobility centres in Dagenham and Havering.

A-T Society

Website: 
http://www.atsociety.org.uk/
Description

A great information website designed to help and inform families.

Contact a family

Website: 
http://www.cafamily.org.uk/
Description

A UK wide charity providing advice, information and support to parents of all disabled children.