The term myopathy is derived from the Greek and it means muscle disorder.
Myo = muscle
Pathy= disease
The congenital myopathies are a group of conditions which cause weakness and wasting of the muscles. In general symptoms are present at birth but may not be recognised until later on in childhood or even in adult life.
Congenital refers to the onset of the myopathy and means from birth.
Normal muscles consist of two types of muscle fibres (type 1 and type 2) and these fibres in young children are roughly the same size. In congenital fibre type disproportion; the type 1 fibres are smaller than type 2.
SEaTSS can support students with this condition.
To refer to SEATSS please use this link:
https://eforms.redbridge.gov.uk/single-point-of-access-referral-form-for-education-support/
Tomcat Trikes in action
A variety of stretches for beginner wheelchair basketball players, but could be usd with students who are in a wheelchair. Always ensure you seek advice for student's physiotherapist if you …
There are a series of short video's providing an overview of Congenital Myopathies.
Available from:
TfL have recently introduced a badge to help Adults and Children who may have difficulty standing/ waiting on all TfL transport. It is designed to be supportive for hidden disabilities and medical conditions. The badges are free- you do notneed…
The degree of muscle weakness is variable, and generally involves muscles of the trunk and limbs and those with proximal involvement eg shoulders and thighs.
Symptoms vary, however the following can be observed;
Children can be shorter than their peers, and over time develop curvature of the spine.
Hearing, vision and intelligence are normally unaffected.
Whizz-Kidz is a charity aiming to provide disabled children and young customised mobility equipment, training, advice and life skills.
This Charity provides equipment to children that is not available on the NHS. They also run Wheelchair training courses/ Mobility centres in Dagenham and Havering.
A very comprehensive website offering information and support.
A UK wide charity providing advice, information and support to parents of all disabled children.
SERC / Newbridge School
Barley Lane Campus, 258 Barley Lane
Goodmayes
Ilford, IG3 8XS
SERC is a service and information centre brought to you by Redbridge.
