Redbridge SERC

Epilepsy

Description

Key facts

Epilepsy is currently defined as a tendency to have recurrent seizures (sometimes called fits).

A seizure is caused by a sudden burst of excess electrical activity in the brain, causing a temporary disruption in the normal message passing between brain cells.

It has been suggested that 1 in every 200 Secondary Pupils has epilepsy (yourepilepsy.org)

Fact sheets

Training / Help

Epilepsy is a relatively common condition, but can present in many different ways. School nurse / Pupil's hospital consultant / Newbridge Outreach can all offer help and support.

Videos

Screenshot for video: Film to use for CPD - Epilepsy

Film to use for CPD - Epilepsy

A 9 minute film explianing key facts and how to support pupils who have Epilepsy. You can also download a pack to accompany the film - website given at the beginning …

Screenshot for video: Epilepsy Awareness film

Epilepsy Awareness film

Epilepsy awareness film - showing different types of seizures and how to help practically.

Screenshot for video: Social history of Epilepsy

Social history of Epilepsy

A good film showing the social history of perceptions around Epilepsy. A variety of people talk about their experiences of having Epilepsy.

Lesson Resources

Children’s Chatterbox

http://www.epilepsy.org.uk/sites/epilepsy/files/images/downloads/epilepsyaction_chatterbox.pdf

Epilepsy Action has produced a fun chatterbox game, with questions and answers about epilepsy and activities.

    The chatterbox is an ideal tool to help children learn more about epilepsy, for example in PSHE or citizenship lessons.

    Learning Aids

    Please offer me a seat badge

    Please offer me a seat badge

    Available from:

    TfL have recently introduced a badge to help Adults and Children who may have difficulty standing/ waiting on all TfL transport. It is designed to be supportive for hidden disabilities and medical conditions. The badges are free- you do notneed…

    Illustrations

    Stickman Communication

    Stickman Communication

    Stickman Communications create brilliantly simple cards to help communicate a variety of conditions/ disabilities. They currently cover; * ASD * Sensory overload * Allergies  * Medical conditions  * Bowel and bladder conditions * Hypermobility and EDS * Migraine * Seizures * POTS /SVT * Visual impairment * Mental Health *…
    Full Size image

    Source: http://stickmancommunications.co.uk/epages/747384.sf/en_GB/?ObjectPath=/Shops/747384/Categories/topics

    Frequently Asked Questions

    • What is Lennox- Gastaut Syndrome?

      Lennox-Gastaut syndrome:

      • is one of the most severe forms of childhood epilepsy
      • there is no known cause for @ 1/3 of all cases
      • does not run in families
      • accounts for 10% of all childhood epilepsies
      • seizures normally start between 2- 5 yrs of age, and rarely start after the age of 8
      • does not respond to epileptic drug treatment
      • a child's development is rarely normal before the seizures start
      • can be one of the hardest forms of childhood epilepsy to treat
      • Dr's may consider cutting the corpus Callosum ( the large group of nerve fibres connecting the two halves of the brain) as this can sometimes help, however the seizures can return after a period of time.

       

    • What are the educational implications for students who have Epilepsy?
      • Care needs to be taken in subjects such as Science / Technology.
      • Apply for extra time in examinations to allow for a rest break
      • Ensure school day is paced well - tiredness and stress can trigger seizures
      • Only 5 & of pupils with Epilepsy have photosensitive epilepsy - care needs to be taken with TV and computer screens, flickering overhead lights, sunlight flickering through blinds

       

    • Are there different types of Epilepsy?
      • Idiopathic Epilepsy– arise from genetic abnormalities.
      • Cryptogenic Epilepsy- the cause is not established at the time of testing.
      • Symptomatic Epilepsy– arise from the effects of an epileptic lesion such as a tumor, or a defect in metabolism causing widespread injury to the brain
    • What are the educational implications for students who have Epilepsy?
      Care in subjects such as Science / technology Apply for extra time in examinations (reasonable adjustment) Tiredness and stress can increase seizures– ensure school day is paced. Only 5 % of pupils with Epilepsy have photosensitive epilepsy—care needs to be taken with TV screen, computers, flickering over head lights, geometric designs, and sunlight flickering through blinds. Download ‘Routes to success’ pdf, which outlines the successful strategies a range of schools have introduced to support pupils with Epilepsy.
    • What are 'absences'?

      'Absences' describe a period of time when a student may

      • go blank and stares.
      • blinking eyes
      • odd movements of the hands or noddng of the head

      These can be very brief and extremely frequent.

      Episodes can merge into each other, lasting for hours/ days and this is then called 'non-convulsive status epilepticus'.

    • What are 'myoclonic seizures'?
      • These type of seizures are very rare.
      • There is normally a sudden muscle jerk before the pupil falls to the ground.
    • What should I do if I see a seizure?

      Students who have Epilepsy should all have an agreed Care Protocol which has previously been agreed by health professionals, parents and school- staff should follow the guidelines outlined there.

      In general:

      • Note the time the seizure starts
      • Ensure the student is safe by removing items around them
      • Protect the students heads by playing a cushion, jumper underneath their head
      • Do not hold the student down or restrict body movements
      • Do not put anything in their mouth
      • Try to ensure privacy
      • Once the seizure has stopped, place the student into the recovery position
      • Reassure the student

      Call an ambulance if

      • This is the student's first seizure
      • If the student hurt themselves during the fit
      • If the student has fitted longr than stated in Protocol
      • If the students has another seizure straight after the first
      • Emergency medication has no effect
      • Generaly if the seizure last longer than 5 mins unless agreed in Protocol.

       

       

       

    • Are there different types of seizures?

      Types of Seizures

      • Partial seizures (focal) - epileptic activity in part of the brain.
      • Simple partial seizures - person is fully conscious.
      • Complex partial seizures - person partly loses consciousness.
      • Generalised - Involves both side of the brain. Person loses consciousness.
      • Secondary generalised - Starts as partial and changes to generalised.
    • What are the educational implications for students who have Epilepsy?

      Epilepsy may impact upon:

      • learning
      • concentration
      • memory
      • behaviour
      • self esteem
      • speech and language
      • fine and gross motor skills
    • What is Landau- Kleffer Syndrome?
      • Landau-Kleffner Syndrome is a rare form of childhood epilepsy which results in language difficulties.
      • Initially language develops normally, but becomes disrupted and different areas can be affected.
      • Students have severe difficutlies with receptive language, requiring a long time to process information.
      • Students could have word retrieval difficulties and can get stuck on related words.
      • A students language difficulties can deteriorate over time, fluctuate daily, change.
      • www.friendsoflks.com Parent support group and provides clear information

    Family Resources

    Epilepsy App for your phone !

    Phone: 
    01494 601 400
    Website: 
    http://www.epilepsysociety.org.uk/NewGetInvolved/Awarenessraising/Firstaidmobileapps
    Description

    Did you know you can download an App for your phone?

    • Suitable for iphone and Android phones

    It provides:

    • interactive seizure diary
    • keep a record of specific type of seizures
    • medical information recorded
    • basic seizure management advice and First Aid

    Parent support link for pupils who have Epilepsy

    Website: 
    http://www.ncype.org.uk/epilepsy/parenthandbook
    Description

    Contact a family

    Website: 
    http://www.cafamily.org.uk/
    Description

    A UK wide charity providing advice, information and support to parents of all disabled children. 

    Outreach Services

    Newbridge Outreach Service

    Phone: 
    0208 503 8773
    Email: 
    .(JavaScript must be enabled to view this email address)
    Website: 
    http://www.redbridgeserc.org
    Description

    Newbridge Outreach Service provides support to pupils with a range of learning, medical and physical difficulties.

    http://www.newbridge.redbridge.sch.uk/introduction2

    • physical disability
    • physical disability with associated learning/communication difficulties
    • dyspraxia and related specific learning difficulties
    • perceptual difficulties
    • fine and gross motor skill development
    • difficulties with handwriting and alternative forms of recording.

    Support is provided by

    • providing assessments
    • setting targets for learning / writing individual programmes
    • modify curriculum content and delivery
    • identify and use specialist resources
    • helping to provide support and advice to parents
    • delivering INSET for all staff, other agencies and parents

    Request for support should come from the school the pupil is attending or another Agency involved.