Friedreich's ataxia is the most common type of hereditary ataxia (caused by genes you've inherited).
It's thought to affect at least 1 in every 50,000 people.
Signs and symptoms of Friedreich's ataxia can include:
The symptoms of Friedreich's ataxia usually get gradually worse over many years.
People with the condition tend to have a shorter life expectancy than normal.
Many people live until at least their 30s, and some can live into their 60s or beyond.
SEaTSS can support students with this condition.
To refer to SEATSS please use this link:
https://eforms.redbridge.gov.uk/single-point-of-access-referral-form-for-education-support/
Moving and accessing forms of PE is usually highly recommended, as it is vital to encourage students to be as mobile as possible.
Take advice from Physio, but usually gym/ cardio activities are easy to differentiate and pace.
There is currently lots of research looking into genetic cures for FA
In the meantime, support from Physio and OT are vital to support and maintain the range of movement Students have
Students with FA will be closely monitored for changes in their heart, vision, hearing, diabetes
Life expectancy may be affected, and many people with Friedreich ataxia die in adulthood from the associated heart disease.
However, some people with less severe symptoms of Friedreich ataxia live much longer, sometimes into their sixties or seventies.