Redbridge SERC

Juvenile Arthritis

Description

  • Juvenile arthritis (JA) is an umbrella term used to describe the many autoimmune and inflammatory conditions that can develop in children ages 16 and younger.
  • Arthritis typically affects joints.
  • The word "arthritis" literally means joint inflammation: 'arth' (joint) and 'itis' (inflammation).
  • Juvenile Arthritis can involve the eyes, skin and gastrointestinal tract as well.
  • The most common type of JA is juvenile idiopathic arthritis (JIA).
  • To receive a diagnosis, a child should be younger than 16 and have initial swelling in one or more joints for at least six weeks.
  • Affects 1 in 1,000 pupils in UK

Fact sheets

Training / Help

Support and advice can be obtained from

  • Newbridge Outreach
  • School nurse
  • Physiotherapy
  • Occupational therapy
  • Student's own consultant / medical team

Videos

Screenshot for video: Tomcat adapted trikes

Tomcat adapted trikes

Tomcat Trikes in action

Screenshot for video: Embaressing Bodies Clip relating to Arthritis

Embaressing Bodies Clip relating to Arthritis

This is a frank and honest view of Arthritis. Only a short film but is good for increasing awareness in staff.

Screenshot for video: A good general awareness video

A good general awareness video

This video is a very effective tool highlighting that students with Juvenile Arthritis may be able to join in all the normal play/ sporting actvities however for some students there …

Learning Aids

Please offer me a seat badge

Please offer me a seat badge

Available from:

TfL have recently introduced a badge to help Adults and Children who may have difficulty standing/ waiting on all TfL transport. It is designed to be supportive for hidden disabilities and medical conditions. The badges are free- you do notneed…

Illustrations

Stickman Communication

Stickman Communication

Stickman Communications create brilliantly simple cards to help communicate a variety of conditions/ disabilities. They currently cover; * ASD * Sensory overload * Allergies  * Medical conditions  * Bowel and bladder conditions * Hypermobility and EDS * Migraine * Seizures * POTS /SVT * Visual impairment * Mental Health *…
Full Size image

Source: http://stickmancommunications.co.uk/epages/747384.sf/en_GB/?ObjectPath=/Shops/747384/Categories/topics

Frequently Asked Questions

  • What are the educational implications for students who have Juvenile Arthritis?
    • Early morning stiffness can impact upon attendance - build in time to allow for this in morning routine
    • Pupils can look fit and well so care needs to be given that pain relief is available if required.
    • Fine motor tasks can be tiring - consider access to ICT.
    • Attendance can be affected - ensure pupil has the means to catch up
    • Avoid carrying heavy books - second set of books for home and increased locker access around school
    • Make individual adaptations as required annotated in an I.E.P
    • Extra time in examinations
    • Consider the different aspects of PE activities and the effect of the cold.
    • Pupils may be mobile sometimes and use a wheelchair at others
    • This condition can fluctuate day by day - plan to accomodate this
    • Personal care needs- does the pupil need help?
    • Iritis can be linked to JIS, monitor for eyes that appear red and inflamed
    • Access to pain relief quickly if medically advised.
  • What is Pauci-articular arthritis?
    • Pauci-articular arthritis affects fewer than 5 joints, and is the most common form.
    • It tends to occur in children under the age of 5, and this type effects more girls than boys.
    • Iritis (eye condition) can be associated with this condition.
    • Many children go into remission after 3 or 4 yrs.
    • Others progress to Polyarticular arthritis.
  • What is Oligoarthritis?

    This type of Juvenile Arthritis accounts for 40 percent of new JIA patients.

    It is diagnosed when four or fewer joints are involved within the first six months.

    This form is more common in girls.

  • What is Polyarthritis?

    A child is diagnosed with polyarthritis when five or more joints are involved during the first six months.

    This form of arthritis is more common in girls.

  • What is systemic arthritis?

    Though broad in reach, with the potential to involve the entire body – systemic JIA is narrow in scope, comprising only about 10 percent of JIA cases.

    Symptoms may include a non-contagious fever and rash, and inflammation can particularly affect the spleen or the membranes that are covering the lungs and heart.

  • What are the other forms of arthritis found in children?

    Other forms include

    • juvenile lupus
    • juvenile scleroderma
    • juvenile psoriatic arthritis
    • juvenile dermatomyositis

    Children can also experience non-inflammatory disorders, which are characterized by chronic pain associated with heredity, injury or unknown causes.

  • What is Enthesitis- related arthritis?

    This type is characterized by the inflammation of the entheses, or sites where tendons attach to the bone.

  • What is the treatment for Juvenile Arthritis?
    • No specific cure.
    • Aim to reduce inflammation and control pain.
    • Splints and orthotics can offer some relief and support.

Family Resources

Net buddy- holiday information pack

Website: 
http://www.netbuddy.org.uk/info-packs/holidays/
Description

Net buddy is a great website- full of ideas, tips and specific information.

They have prepared a great Holiday factsheet that has a very comprehensive list of holidays for students who have special needs.

Whizz Kids

Website: 
http://www.whizz-kidz.org.uk/
Description

Whizz-Kidz is a charity aiming to provide disabled children and young customised mobility equipment, training, advice and life skills.

This Charity provides equipment to children that is not available on the NHS. They also run Wheelchair training courses/ Mobility centres in Dagenham and Havering.

Contact a family

Website: 
http://www.cafamily.org.uk/
Description

A UK wide charity providing advice, information and support to parents of all disabled children. 

Outreach Services

Newbridge Outreach Service

Phone: 
0208 503 8773
Email: 
.(JavaScript must be enabled to view this email address)
Website: 
http://www.redbridgeserc.org
Description

Newbridge Outreach Service provides support to pupils with a range of learning, medical and physical difficulties.

http://www.newbridge.redbridge.sch.uk/introduction2

  • physical disability
  • physical disability with associated learning/communication difficulties
  • dyspraxia and related specific learning difficulties
  • perceptual difficulties
  • fine and gross motor skill development
  • difficulties with handwriting and alternative forms of recording.

Support is provided by

  • providing assessments
  • setting targets for learning / writing individual programmes
  • modify curriculum content and delivery
  • identify and use specialist resources
  • helping to provide support and advice to parents
  • delivering INSET for all staff, other agencies and parents

Request for support should come from the school the pupil is attending or another Agency involved.

Occupational Therapy

Phone: 
020 8924 6111
Website: 
http://www.redbridge.gov.uk/
Description

The Occupational Therapy Team are now based at Redbridge Child Development Centre (0 -19yrs), previously known as The Kenwood Centre in Barkingside.

S.E.R.C

Phone: 
0208 503 8773
Email: 
.(JavaScript must be enabled to view this email address)
Website: 
http://www.redbridgeserc.org
Description

Age range of pupils they support: 4- 19 yrs

Students they support:

  • SERC completes individual assessments for pupils who have complex needs or specific physical disability ( see SERC criteria form on home page)
  • SERC are happy to offer wider advice to support whole school SEN Inclusive ICT provision.
  • Training and support is free to all Redbridge Schools.

Range of support offered:

  • This centre based at Newbridge School, provides advice and support in the use of Information Technology with pupils who have special educational needs or a physical/ sensory disability.
  • S.E.R.C provides individual assessments of ICT needs of individual needs of pupils with SEN, in both mainstream and special schools.
  • Training for teachers and support staff who work with pupils with SEN.
  • Support and advice to parents/ carers of children who have SEN.

Address:                         S.E.R.C, Newbridge School, 258 Barley Lane, Ilford, Essex, IG38XS