Redbridge SERC

Tourette Syndrome

Description

Tourette syndrome (TS) is an inherited, neurological disorder characterised by multiple involuntary movements and uncontrollable vocalisations called tics that come and go over years.

In a few cases, such tics can include inappropriate words and phrases.

Control, which can sometimes be exercised from seconds to hours at a time, may merely postpone more severe outbursts of symptoms.

Fact sheets

Training / Help

Training and support can be obtained from

  • Educational Pyschology
  • Refer to other Outreach services depending upon the primary need being shown.

Videos

Screenshot for video: Tourette’s syndrome

Tourette’s syndrome

Tourette syndrome awareness video from the students view.

Screenshot for video: My Tourettes Story

My Tourettes Story

A very helpful video made by Caspar.

Screenshot for video: Me and My Tourettes

Me and My Tourettes

Jack is 8 yrs old and explains motor tics

Learning Aids

Please offer me a seat badge

Please offer me a seat badge

Available from:

TfL have recently introduced a badge to help Adults and Children who may have difficulty standing/ waiting on all TfL transport. It is designed to be supportive for hidden disabilities and medical conditions. The badges are free- you do notneed…

Illustrations

Stickman Communication

Stickman Communication

Stickman Communications create brilliantly simple cards to help communicate a variety of conditions/ disabilities. They currently cover; * ASD * Sensory overload * Allergies  * Medical conditions  * Bowel and bladder conditions * Hypermobility and EDS * Migraine * Seizures * POTS /SVT * Visual impairment * Mental Health *…
Full Size image

Source: http://stickmancommunications.co.uk/epages/747384.sf/en_GB/?ObjectPath=/Shops/747384/Categories/topics

Frequently Asked Questions

  • Why is it called Tourette's syndrome?

    The disorder is named for Dr. Georges Gilles de la Tourette, the pioneering French neurologist who first described an 86-year-old French noblewoman with the condition in 1885.

  • Does this condition affect males more than females?

    Males are affected 3 or 4 times more than females.

    It affects one schoolchild in every hundred and more than 300,000 children and adults in the UK.

  • Can Tourette's Syndrome be treated?

    For most pupils the symptoms do not impact considerably, so the decision is made not to use medication.

    However for more complex cases medication can be used, but it appears this may have long term side effects.

    A more in depth look at different treatments can be found at http://www.tourettesyndromeguide.com/treatment.html

  • Are there different types of Tourette's Syndrome?

    There are two main types of Tourette Syndrome;

    • Simple - Motor -eye blinking, head jerking, shoulder shrugging and facial grimacing, vocal - throat clearing, yelping and other noises, sniffing and tongue clicking.
    • Complex- Motor - jumping, touching other people or things, smelling, twirling about, and only rarely, self-injurious actions including hitting or biting oneself, vocal - uttering words or phrases out of context and coprolalia (vocalizing socially unacceptable words).
  • How can I help in class?
    • Tolerant and empathetic environment in which to learn
    • Private study area
    • Exams away from main class
    • Untimed tests / extra time / movement break

Family Resources

Tourettes Action

Phone: 
TS helpline: 0300 777 8427
Email: 
.(JavaScript must be enabled to view this email address)
Website: 
http://www.tourettes-action.org.uk/
Description
  • Key issues covered in a series of short films
  • There is an opportunity to have a holiday with other people who have Tourette's Syndrome.
  • Free drumming workshops for students with Tourette's Syndrome aged 5- 18 yrs

Contact a family

Website: 
http://www.cafamily.org.uk/
Description

A UK wide charity providing advice, information and support to parents of all disabled children. 

Relaxed performances -National Theatre

Phone: 
44 (0)20 7452 3000
Email: 
.(JavaScript must be enabled to view this email address)
Website: 
http://www.nationaltheatre.org.uk/your-visit/access/relaxed-performances
Description

Gill Dodson who works for Newbridge recently shared with us her recent trip to see a relaxed performance of Matilda. She could not recommend this highly enough and said there were lots of accomodations for a range of SEN.

Looking at their website the next performance appears to be War Horse in September.