Redbridge SERC

Tourette Syndrome

Description

Tourette syndrome (TS) is an inherited, neurological disorder characterised by multiple involuntary movements and uncontrollable vocalisations called tics that come and go over years.

In a few cases, such tics can include inappropriate words and phrases.

Control, which can sometimes be exercised from seconds to hours at a time, may merely postpone more severe outbursts of symptoms.

Fact sheets

Training / Help

Training and support can be obtained from

  • Educational Pyschology
  • Refer to other Outreach services depending upon the primary need being shown.

Videos

Screenshot for video: Tourette’s syndrome

Tourette’s syndrome

Tourette syndrome awareness video from the students view.

Learning Aids

Please offer me a seat badge

Please offer me a seat badge

Available from:

TfL have recently introduced a badge to help Adults and Children who may have difficulty standing/ waiting on all TfL transport. It is designed to be supportive for hidden disabilities and medical conditions. The badges are free- you do notneed…

Illustrations

Stickman Communication

Stickman Communication

Stickman Communications create brilliantly simple cards to help communicate a variety of conditions/ disabilities. They currently cover; * ASD * Sensory overload * Allergies  * Medical conditions  * Bowel and bladder conditions * Hypermobility and EDS * Migraine * Seizures * POTS /SVT * Visual impairment * Mental Health *…
Full Size image

Source: http://stickmancommunications.co.uk/epages/747384.sf/en_GB/?ObjectPath=/Shops/747384/Categories/topics

Frequently Asked Questions

  • Why is it called Tourette's syndrome?

    The disorder is named for Dr. Georges Gilles de la Tourette, the pioneering French neurologist who first described an 86-year-old French noblewoman with the condition in 1885.

  • Does this condition affect males more than females?

    Males are affected 3 or 4 times more than females.

    It affects one schoolchild in every hundred and more than 300,000 children and adults in the UK.

  • How can I help in class?
    • Tolerant and empathetic environment in which to learn
    • Private study area
    • Exams away from main class
    • Untimed tests / extra time / movement break
  • Can Tourette's Syndrome be treated?

    For most pupils the symptoms do not impact considerably, so the decision is made not to use medication.

    However for more complex cases medication can be used, but it appears this may have long term side effects.

    A more in depth look at different treatments can be found at http://www.tourettesyndromeguide.com/treatment.html

  • Are there different types of Tourette's Syndrome?

    There are two main types of Tourette Syndrome;

    • Simple - Motor -eye blinking, head jerking, shoulder shrugging and facial grimacing, vocal - throat clearing, yelping and other noises, sniffing and tongue clicking.
    • Complex- Motor - jumping, touching other people or things, smelling, twirling about, and only rarely, self-injurious actions including hitting or biting oneself, vocal - uttering words or phrases out of context and coprolalia (vocalizing socially unacceptable words).

Family Resources

Net buddy- holiday information pack

Website: 
http://www.netbuddy.org.uk/info-packs/holidays/
Description

Net buddy is a great website- full of ideas, tips and specific information.

They have prepared a great Holiday factsheet that has a very comprehensive list of holidays for students who have special needs.

Tourettes Action

Phone: 
TS helpline: 0300 777 8427
Email: 
.(JavaScript must be enabled to view this email address)
Website: 
http://www.tourettes-action.org.uk/
Description
  • Key issues covered in a series of short films
  • There is an opportunity to have a holiday with other people who have Tourette's Syndrome.
  • Free drumming workshops for students with Tourette's Syndrome aged 5- 18 yrs

Contact a family

Website: 
http://www.cafamily.org.uk/
Description

A UK wide charity providing advice, information and support to parents of all disabled children. 

Outreach Services

Hatton Outreach Service

Phone: 
020 8551 4131
Email: 
.(JavaScript must be enabled to view this email address)
Website: 
http://www.hattonspecialschool.co.uk/
Description

This specialist outreach support and consultancy service provides support for individual pupils in mainstream primary schools.

The outreach service works with pupils who have a range of significant language, social and learning needs.

Some pupils may have a statement of special educational needs, while others will have significant needs and working at school action plus.

Redbridge Child and Adolescent Mental Health Service (CAMHS)

Phone: 
0844 600 1182
Email: 
.(JavaScript must be enabled to view this email address)
Website: 
http://www.rcmh.org.uk/infodirectory/loxfordhall.htm
Description

The centre is also known as Loxford Hall Child and Familiy Consultation Centre.

The centre is operated in partnership with London Borough of Redbridge Children and Families Service and North East London Mental Health NHS Trust.

Age range of pupils they support:      -> 18 yrs

Students they support:    A child/ young person under 18 with relatively severe or complex emotional, behavioural or mental health difficutlies, appropriately screened prior to referral.

How to refer: 

Referrals are accepted from professionals in health, education and children's services.

The centre specialises in helping families with children and young people with emotional, behavioural or relationship difficulties.

In the case of referrals from educational service, consultation should have taken place before the referral is made with the appropriate person from that service eg

  • educational psychologists
  • education welfare officers
  • schools nurses
  • behaviour support teams

Address:      Redbridge CAMHS, Loxford Hall, Loxford Lane, Ilford, Essex, IG12PL

 

Little Heath Outreach Service

Phone: 
020 8599 4864
Email: 
.(JavaScript must be enabled to view this email address)
Website: 
http://lheath.net/home
Description

Support can be provided for students with:

  • language and communication difficulties including Autistic Spectrum Disorders and Asperger’s Syndrome;
  • specific learning difficulties;
  • general learning difficulties.
  • specific language difficulties;