Redbridge SERC

Turner’s Syndrome

Description

Turner Syndrome is a chromosomal condition which effects the second X chromosome, this chromosome is absent or abnormal.

It is one of the most common chromosomal disorders.

It effects 1 in 2,500 girls.

Girls with Turner Syndrome are all different as they can be affected by a different number of symptoms.

Fact sheets

Training / Help

Refer to the Outreach Service depending upon the most significant need eg

Learning - Hatton Outreach

Physical - Newbridge Outreach 

Videos

Screenshot for video: Turner Syndrome Foundation film

Turner Syndrome Foundation film

A positive overview film made by Turner Syndrome Foundation. Useful film as adult women talk about their own experiences of having Turner Syndrome.

Screenshot for video: Turner Syndrome awareness film

Turner Syndrome awareness film

A useful overview of symptoms of Turner Syndrome.

Screenshot for video: Turner Syndrome Diaries- Sam

Turner Syndrome Diaries- Sam

Sam shares her personal experience of living with Turner Syndrome. Presented by the Turner Syndrome Foundation.

Learning Aids

Please offer me a seat badge

Please offer me a seat badge

Available from:

TfL have recently introduced a badge to help Adults and Children who may have difficulty standing/ waiting on all TfL transport. It is designed to be supportive for hidden disabilities and medical conditions. The badges are free- you do notneed…

Frequently Asked Questions

  • Do girls with Turner Syndrome have learning difficulties?

    Girls with Turner syndrome can have specific difficulties with:

    • Numeracy tasks involving spatial awareness
    • Visual perceptual skills eg graphs, puzzles, maps, visual positioning and organisation.
    • Attention - many students with Turner Syndrome can be hyperactive.
  • How can I help at home?
    • arrange areas in the house to allow for maximum independence eg position of food, bowls etc
    • provide 'handy steps' in kitchen / bathroom 
    • adjust height of clothing storage drawers/ clothes rails
    • age appropriate clothes
    • adapt household/ independence tasks to develop a sense of achievement.
    • promote and celebrate problem solving strategies.
    • avoid 'babying' and passing on clothes, toys etc from younger children especially siblings.
    • practice and prepare responses to height comments/ jokes
  • How can we help at school?
    • Do not baby her
    • Give responsibility
    • Discuss with the pupil equipment/ seating size- some would prefer to 'manage' with larger equipment than appear different in class.
    • Be sensitive to peer comments/ bullying / general awareness of the condition
    • Be sensitive around the age of puberty when girls naturally start to compare their changing bodies.
    • Explore sports where height is not an issue eg Horseridng, gymnastics, dancing
  • What are the physical characteristics of students who have Turner Syndrome?

    Girls with Turner Syndrome have:

    • short stature, with an average adult height of 4 ft 7''
    • lack secondary sexual characteristics and can be infertile
    • medical problems with diabetes, thyroid, ears, eyes, heart, kidney,and high blood pressure.
    • low set ears, low hairline, webbed neck, pigmented moles, elbows that bend outwards, puffy hands and feet. 
    • broad chest
    • upturned nails

Family Resources

How to survive and succeed - free booklet to download

Phone: 
0300 111 7520
Email: 
http://www.tss.org.uk/index.php/contact
Website: 
http://www.tss.org.uk/downloads/TSSS%20education%20booklet.pdf
Description

This booklet is published by the Turner Syndrome Support Society (TSSS) as an aid to both parents and teachers of girls with Turner syndrome (TS).
It is not definitive, but written as a result of many shared experiences of those with TS, their parents and teachers. The booklet is intended to provide help when dealing with problems or difficulties that may be faced by girls with TS during their school years.

The Turner Syndrome Support Society

Website: 
http://www.tss.org.uk/
Description

TSS offers great advice and support to females effected by Turner Syndrome.

The website offers:

  • latest medical advice
  • familiy fun weekend details
  • Annual Conference details

TSSS also has a range of helpful booklets and DVD's.

Turner Syndrome Support Society

Phone: 
0300 111 7520
Email: 
http://www.tss.org.uk/index.php/contact
Website: 
http://www.tss.org.uk/index.php/publications-and-information
Description

Turner Syndrome Support Society provide the following resources;

  • Turner Syndrome – lifelong guidance and support
  • Talking About Turner Syndrome - the DVD
  • Talking About Turner Syndrome - the booklet 
  • How to Help Your Child Survive and Succeed in School.An information leaflet for teachers. 
  • Teens & Turner Syndrome - What’s it All About?
  • Turner Syndrome: A Guide For Patients & Parents
  • The Turner Woman: A Patient Guide
  • Footwear Advice for Girls with Turner Syndrome
  • Massage techniques (For Lymphoedema)/Skin Care Advice
  • Adult TS checks & Clinic information
  • Spatial Relations & Learning