S.E.a.T.S.S Team provides Resource Packs to help Families and School Staff

News

• Achondroplasia
• Agenesis of the Corpus Callosum
• Arthogryposis Disorder
• Asthma
• Ataxia-Telangiectasia Disorder
• Ataxic Cerebral Palsy
• Becker Muscular dystrophy
• Bowel/ Incontinence
• Brittle Bones / Osteogenesis
• Cerebral Palsy
• Cerebral Palsy - Hemiplegia
• Congenital Myopathy
• Cri du Chat Syndrome
• Crohns Disease
• Cystic fibrosis
• Diabetes
• Diamond Blackfan Anaemia (DBA)
• Ehlers-Danlos Syndrome
• Epilepsy
• Foetal Alcohol Syndrome
• Freidreich's Ataxia
• Hearing Impairment
• Hydrocephaly
• Hypermobility
• Juvenile Arthritis
• Limb differences (congenital)
• Marfan Syndrome
• Microcephaly
• Migraine
• Muscular dystrophy
• Myotonic Dystrophy
• Neurofibromatosis
• Other medical conditions
• Rubenstein-Taybi Syndrome
• Scoliosis
• Spastic Cerebral Palsy
• Spina Bifida
• Talipes / Clubfoot
• Turner Syndrome
• Down’s Syndrome
• Dyscalculia
• Dyslexia
• CPD Materials
• Positive profile of dyslexia
• Resources
• School provision - advice/ information/ things to consider
• Dyspraxia
• Williams Syndrome
• Aspergers Syndrome
• Attention Deficit Hyperactivity Disorder
• Auditory processing disorder
• Autism/ ASC
• Fragile X syndrome
• Semantic Pragmatic
• Sensory Processing Disorder
• Tourette’s syndrome
• Apps
• Behaviour
• Bereavement
• Celebrations- differentiated resources
• Early Years
• Emotional support
• Family Support
• Fine Motor Skills
• General Senco/LSA resources
• Gross and Fine motor Assessment resources
• Gross Motor Activity Packs
• Gross Motor Skills
• Happy Hands
• Healthy Hands
• Humanities
• ICT
• Literacy / English
• Managing medical conditions in school
• Memory / organisation
• Complex Needs/ Sensory/ Students who are working below NC levels
• P.E.
• Precision teaching resources
• PSCHE
• Science
• Self help skills
• Sensory impairment
• Social
• Speech/ Language/ Communication
• Study skills / recording
• Transition
• Visual perception
• Early Years / Foundation
• Key Stage 1
• Key Stage 2
• Key Stage 3
• Key Stage 4

S.E.a.T.S.S create new resources to support Anxiety and Stress

News

• Achondroplasia
• Agenesis of the Corpus Callosum
• Arthogryposis Disorder
• Asthma
• Ataxia-Telangiectasia Disorder
• Ataxic Cerebral Palsy
• Becker Muscular dystrophy
• Bowel/ Incontinence
• Brittle Bones / Osteogenesis
• Cerebral Palsy
• Cerebral Palsy - Hemiplegia
• Congenital Myopathy
• Cri du Chat Syndrome
• Crohns Disease
• Cystic fibrosis
• Diabetes
• Diamond Blackfan Anaemia (DBA)
• Ehlers-Danlos Syndrome
• Epilepsy
• Foetal Alcohol Syndrome
• Freidreich's Ataxia
• Hearing Impairment
• Hydrocephaly
• Hypermobility
• Juvenile Arthritis
• Limb differences (congenital)
• Marfan Syndrome
• Microcephaly
• Migraine
• Muscular dystrophy
• Myotonic Dystrophy
• Neurofibromatosis
• Other medical conditions
• Rubenstein-Taybi Syndrome
• Scoliosis
• Spastic Cerebral Palsy
• Spina Bifida
• Talipes / Clubfoot
• Turner Syndrome
• Down’s Syndrome
• Dyscalculia
• Dyslexia
• Dyspraxia
• Williams Syndrome
• Aspergers Syndrome
• Attention Deficit Hyperactivity Disorder
• Auditory processing disorder
• Autism/ ASC
• Fragile X syndrome
• Semantic Pragmatic
• Sensory Processing Disorder
• Tourette’s syndrome

How to get help from the SEATSS Team

Fact Sheets

• Achondroplasia
• Agenesis of the Corpus Callosum
• Arthogryposis Disorder
• Asthma
• Ataxia-Telangiectasia Disorder
• Ataxic Cerebral Palsy
• Becker Muscular dystrophy
• Bowel/ Incontinence
• Brittle Bones / Osteogenesis
• Cerebral Palsy
• Cerebral Palsy - Hemiplegia
• Congenital Myopathy
• Cri du Chat Syndrome
• Crohns Disease
• Cystic fibrosis
• Diabetes
• Diamond Blackfan Anaemia (DBA)
• Ehlers-Danlos Syndrome
• Epilepsy
• Foetal Alcohol Syndrome
• Freidreich's Ataxia
• Hearing Impairment
• Hydrocephaly
• Hypermobility
• Juvenile Arthritis
• Limb differences (congenital)
• Marfan Syndrome
• Microcephaly
• Migraine
• Muscular dystrophy
• Myotonic Dystrophy
• Neurofibromatosis
• Other medical conditions
• Rubenstein-Taybi Syndrome
• Scoliosis
• Spastic Cerebral Palsy
• Spina Bifida
• Talipes / Clubfoot
• Turner Syndrome
• Down’s Syndrome
• Dyscalculia
• Dyslexia
• Dyspraxia
• Williams Syndrome
• Aspergers Syndrome
• Attention Deficit Hyperactivity Disorder
• Auditory processing disorder
• Autism/ ASC
• Fragile X syndrome
• Semantic Pragmatic
• Sensory Processing Disorder
• Tourette’s syndrome
• Family Support
• Featured Resource

UK RTS Facebook Group

Family Resources

• Rubenstein-Taybi Syndrome

BBC Parents SEND pack

News

• Achondroplasia
• Agenesis of the Corpus Callosum
• Arthogryposis Disorder
• Asthma
• Ataxia-Telangiectasia Disorder
• Ataxic Cerebral Palsy
• Becker Muscular dystrophy
• Bowel/ Incontinence
• Brittle Bones / Osteogenesis
• Cerebral Palsy
• Cerebral Palsy - Hemiplegia
• Congenital Myopathy
• Cri du Chat Syndrome
• Crohns Disease
• Cystic fibrosis
• Diabetes
• Diamond Blackfan Anaemia (DBA)
• Ehlers-Danlos Syndrome
• Epilepsy
• Foetal Alcohol Syndrome
• Hearing Impairment
• Hydrocephaly
• Hypermobility
• Juvenile Arthritis
• Limb differences (congenital)
• Marfan Syndrome
• Microcephaly
• Migraine
• Muscular dystrophy
• Myotonic Dystrophy
• Neurofibromatosis
• Other medical conditions
• Rubenstein-Taybi Syndrome
• Scoliosis
• Spastic Cerebral Palsy
• Spina Bifida
• Talipes / Clubfoot
• Turner Syndrome
• Down’s Syndrome
• Dyscalculia
• Dyslexia
• Dyspraxia
• Williams Syndrome
• Aspergers Syndrome
• Attention Deficit Hyperactivity Disorder
• Auditory processing disorder
• Autism/ ASC
• Fragile X syndrome
• Semantic Pragmatic
• Sensory Processing Disorder
• Tourette’s syndrome
• Family Support
• Leisure / Respite/ Short breaks/ holidays/ Parents groups

A family’s view of their child with RTS

Videos

Learning to Speak at Age 18 with a Sister Who Never Quits (Rubinstein-Taybi Syndrome)

• Rubenstein-Taybi Syndrome

Ipsea

Family Resources

Independent parental education support service.

• Achondroplasia
• Agenesis of the Corpus Callosum
• Arthogryposis Disorder
• Ataxia-Telangiectasia Disorder
• Ataxic Cerebral Palsy
• Becker Muscular dystrophy
• Brittle Bones / Osteogenesis
• Cerebral Palsy
• Cerebral Palsy - Hemiplegia
• Congenital Myopathy
• Cri du Chat Syndrome
• Cystic fibrosis
• Diamond Blackfan Anaemia (DBA)
• Ehlers-Danlos Syndrome
• Epilepsy
• Foetal Alcohol Syndrome
• Hearing Impairment
• Hypermobility
• Juvenile Arthritis
• Marfan Syndrome
• Muscular dystrophy
• Myotonic Dystrophy
• Neurofibromatosis
• Rubenstein-Taybi Syndrome
• Spastic Cerebral Palsy
• Spina Bifida
• Turner Syndrome
• Down’s Syndrome
• Williams Syndrome
• Aspergers Syndrome
• Attention Deficit Hyperactivity Disorder
• Autism/ ASC
• Family Support
• Grants/ financial support

Government website signposting to information

Family Resources

All areas of benefit entitlement accessible from here including employment, benefits, carers’ benefits, blue badge and much more.

• Achondroplasia
• Agenesis of the Corpus Callosum
• Arthogryposis Disorder
• Asthma
• Ataxia-Telangiectasia Disorder
• Ataxic Cerebral Palsy
• Becker Muscular dystrophy
• Bowel/ Incontinence
• Brittle Bones / Osteogenesis
• Cerebral Palsy
• Cerebral Palsy - Hemiplegia
• Congenital Myopathy
• Cri du Chat Syndrome
• Crohns Disease
• Cystic fibrosis
• Diabetes
• Diamond Blackfan Anaemia (DBA)
• Ehlers-Danlos Syndrome
• Epilepsy
• Foetal Alcohol Syndrome
• Hearing Impairment
• Hydrocephaly
• Hypermobility
• Juvenile Arthritis
• Limb differences (congenital)
• Marfan Syndrome
• Microcephaly
• Migraine
• Muscular dystrophy
• Myotonic Dystrophy
• Neurofibromatosis
• Other medical conditions
• Rubenstein-Taybi Syndrome
• Scoliosis
• Spastic Cerebral Palsy
• Spina Bifida
• Talipes / Clubfoot
• Turner Syndrome
• Down’s Syndrome
• Williams Syndrome
• Aspergers Syndrome
• Autism/ ASC
• Fragile X syndrome
• Family Support
• Grants/ financial support

Useful tip when wearing masks

Illustrations

• Achondroplasia
• Agenesis of the Corpus Callosum
• Arthogryposis Disorder
• Asthma
• Ataxia-Telangiectasia Disorder
• Ataxic Cerebral Palsy
• Becker Muscular dystrophy
• Bowel/ Incontinence
• Brittle Bones / Osteogenesis
• Cerebral Palsy
• Cerebral Palsy - Hemiplegia
• Congenital Myopathy
• Cri du Chat Syndrome
• Crohns Disease
• Cystic fibrosis
• Diabetes
• Diamond Blackfan Anaemia (DBA)
• Ehlers-Danlos Syndrome
• Epilepsy
• Foetal Alcohol Syndrome
• Freidreich's Ataxia
• Hearing Impairment
• Hydrocephaly
• Hypermobility
• Juvenile Arthritis
• Limb differences (congenital)
• Marfan Syndrome
• Microcephaly
• Migraine
• Muscular dystrophy
• Myotonic Dystrophy
• Neurofibromatosis
• Other medical conditions
• Rubenstein-Taybi Syndrome
• Scoliosis
• Spastic Cerebral Palsy
• Spina Bifida
• Talipes / Clubfoot
• Turner Syndrome
• Visual Impairment
• Down’s Syndrome
• Dyscalculia
• Dyslexia
• Dyspraxia
• Williams Syndrome
• Aspergers Syndrome
• Attention Deficit Hyperactivity Disorder
• Auditory processing disorder
• Autism/ ASC
• Fragile X syndrome
• Semantic Pragmatic
• Sensory Processing Disorder
• Tourette’s syndrome

Challenging Behaviour

Family Resources

  National organisation for those with a severe learning disability and associated behavioural issues

• Cerebral Palsy
• Cri du Chat Syndrome
• Epilepsy
• Foetal Alcohol Syndrome
• Rubenstein-Taybi Syndrome
• Down’s Syndrome
• Autism/ ASC
• Fragile X syndrome
• Behaviour
• Resources to support behaviour