An article about Lucy Hunter who has Marfan Syndrome and she also has two children who have the same syndrome.
A really good modern format to encourage teenagers express themselves. A mixture of video, text and forum style.
Marfan Syndrome explained in a clear simple manner.
Their website has information relating to Marfan Syndrome, research projects, publications and ways to donate.
This is the official UK website- you can download a factsheet from here.
This is the National Marfan Foundation website. A comprehensive website providing advice and support. http://www.marfan.org/marfan/2493/Children-and-Teens/ On this site, there is a specific section relating to …
This is an excellent website covering lots of medical conditions and how Covid may effect children with a range of difficulties