An article about Lucy Hunter who has Marfan Syndrome and she also has two children who have the same syndrome.
Marfan Syndrome explained in a clear simple manner.
A really good modern format to encourage teenagers express themselves. A mixture of video, text and forum style.
Their website has information relating to Marfan Syndrome, research projects, publications and ways to donate.
This is an excellent website covering lots of medical conditions and how Covid may effect children with a range of difficulties