Redbridge SERC

Ehlers-Danlos Syndrome

Description

  • Ehlers-Danlos syndrome is a group of inherited disorders marked by extremely loose joints, hyperelastic skin that bruises easily, and easily damaged blood vessels.
  • There are 6 main types and 5 minor types of EDS.
  • Gene mutations cause problems with collagen. Collagen is the material that provides strength & structure to skin, bone, blood vessels, and internal organs.
  • Family history can increase risk.
  • Some forms of this condition can cause rupture of internal organs/ abnormal heart valves.

Fact sheets

Training / Help

Contact the following services for support

  • Newbridge Outreach Service
  • Physiotherapy
  • Occupational Therapy

Videos

Screenshot for video: Ehlers-Danlos Syndrome awareness video

Ehlers-Danlos Syndrome awareness video

A good 6 minute film- idea for generally developing awareness and training. You may want to stop the film at 3.54 - the remainder of the film is in memory of …

Screenshot for video: Key facts relating to Ehlers-Danlos Syndrome

Key facts relating to Ehlers-Danlos Syndrome

This is a good short film providing a brief overview off Ehlers- Danlos syndrome. Good to share as a summary to the condition.

Screenshot for video: Young lady discussing the impact of EDS.

Young lady discussing the impact of EDS.

An articulate young lady who talks through EDS.

Learning Aids

Please offer me a seat badge

Please offer me a seat badge

Available from:

TfL have recently introduced a badge to help Adults and Children who may have difficulty standing/ waiting on all TfL transport. It is designed to be supportive for hidden disabilities and medical conditions. The badges are free- you do notneed…

Illustrations

Stickman Communication

Stickman Communication

Stickman Communications create brilliantly simple cards to help communicate a variety of conditions/ disabilities. They currently cover; * ASD * Sensory overload * Allergies  * Medical conditions  * Bowel and bladder conditions * Hypermobility and EDS * Migraine * Seizures * POTS /SVT * Visual impairment * Mental Health *…
Full Size image

Source: http://stickmancommunications.co.uk/epages/747384.sf/en_GB/?ObjectPath=/Shops/747384/Categories/topics

Ehlers-Danlos Syndrome

Ehlers-Danlos Syndrome

Illustration showing the greater range of mobility that is associated with Ehlers-Danlos Syndrome.
Full Size image

Photos of people with Ehlers Danlos Syndrome

Photos of people with Ehlers Danlos Syndrome

Here is a quick 50 sec film showing photographic images of people with Ehlers Danlos especially the high elasticity of the skin. If you want to learn more, there is a quick to clik under the film which takes you to…
Full Size image

Source: http://youtu.be/1kvOUPZD32U

Hypermobility

Hypermobility

Line drawings showing hypermobile joints.
Full Size image

Frequently Asked Questions

Family Resources

Contact a family

Website: 
http://www.cafamily.org.uk/
Description

A UK wide charity providing advice, information and support to parents of all disabled children.