Redbridge SERC

Ehlers-Danlos Syndrome

Description

  • Ehlers-Danlos syndrome is a group of inherited disorders marked by extremely loose joints, hyperelastic skin that bruises easily, and easily damaged blood vessels.
  • There are 6 main types and 5 minor types of EDS.
  • Gene mutations cause problems with collagen. Collagen is the material that provides strength & structure to skin, bone, blood vessels, and internal organs.
  • Family history can increase risk.
  • Some forms of this condition can cause rupture of internal organs/ abnormal heart valves.

Fact sheets

Training / Help

Contact the following services for support

  • Newbridge Outreach Service
  • Physiotherapy
  • Occupational Therapy

Videos

Screenshot for video: Ehlers-Danlos Syndrome awareness video

Ehlers-Danlos Syndrome awareness video

A good 6 minute film- idea for generally developing awareness and training. You may want to stop the film at 3.54 - the remainder of the film is in memory of …

Screenshot for video: Key facts relating to Ehlers-Danlos Syndrome

Key facts relating to Ehlers-Danlos Syndrome

This is a good short film providing a brief overview off Ehlers- Danlos syndrome. Good to share as a summary to the condition.

Screenshot for video: Young lady discussing the impact of EDS.

Young lady discussing the impact of EDS.

An articulate young lady who talks through EDS.

Learning Aids

Please offer me a seat badge

Please offer me a seat badge

Available from:

TfL have recently introduced a badge to help Adults and Children who may have difficulty standing/ waiting on all TfL transport. It is designed to be supportive for hidden disabilities and medical conditions. The badges are free- you do notneed…

Illustrations

Stickman Communication

Stickman Communication

Stickman Communications create brilliantly simple cards to help communicate a variety of conditions/ disabilities. They currently cover; * ASD * Sensory overload * Allergies  * Medical conditions  * Bowel and bladder conditions * Hypermobility and EDS * Migraine * Seizures * POTS /SVT * Visual impairment * Mental Health *…
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Source: http://stickmancommunications.co.uk/epages/747384.sf/en_GB/?ObjectPath=/Shops/747384/Categories/topics

Ehlers-Danlos Syndrome

Ehlers-Danlos Syndrome

Illustration showing the greater range of mobility that is associated with Ehlers-Danlos Syndrome.
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Photos of people with Ehlers Danlos Syndrome

Photos of people with Ehlers Danlos Syndrome

Here is a quick 50 sec film showing photographic images of people with Ehlers Danlos especially the high elasticity of the skin. If you want to learn more, there is a quick to clik under the film which takes you to…
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Source: http://youtu.be/1kvOUPZD32U

Hypermobility

Hypermobility

Line drawings showing hypermobile joints.
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Frequently Asked Questions

Family Resources

Contact a family

Website: 
http://www.cafamily.org.uk/
Description

A UK wide charity providing advice, information and support to parents of all disabled children. 

Outreach Services

Newbridge Outreach Service

Phone: 
0208 503 8773
Email: 
.(JavaScript must be enabled to view this email address)
Website: 
http://www.redbridgeserc.org
Description

Newbridge Outreach Service provides support to pupils with a range of learning, medical and physical difficulties.

http://www.newbridge.redbridge.sch.uk/introduction2

  • physical disability
  • physical disability with associated learning/communication difficulties
  • dyspraxia and related specific learning difficulties
  • perceptual difficulties
  • fine and gross motor skill development
  • difficulties with handwriting and alternative forms of recording.

Support is provided by

  • providing assessments
  • setting targets for learning / writing individual programmes
  • modify curriculum content and delivery
  • identify and use specialist resources
  • helping to provide support and advice to parents
  • delivering INSET for all staff, other agencies and parents

Request for support should come from the school the pupil is attending or another Agency involved.

Occupational Therapy

Phone: 
020 8924 6111
Website: 
http://www.redbridge.gov.uk/
Description

The Occupational Therapy Team are now based at Redbridge Child Development Centre (0 -19yrs), previously known as The Kenwood Centre in Barkingside.

S.E.R.C

Phone: 
0208 503 8773
Email: 
.(JavaScript must be enabled to view this email address)
Website: 
http://www.redbridgeserc.org
Description

Age range of pupils they support: 4- 19 yrs

Students they support:

  • SERC completes individual assessments for pupils who have complex needs or specific physical disability ( see SERC criteria form on home page)
  • SERC are happy to offer wider advice to support whole school SEN Inclusive ICT provision.
  • Training and support is free to all Redbridge Schools.

Range of support offered:

  • This centre based at Newbridge School, provides advice and support in the use of Information Technology with pupils who have special educational needs or a physical/ sensory disability.
  • S.E.R.C provides individual assessments of ICT needs of individual needs of pupils with SEN, in both mainstream and special schools.
  • Training for teachers and support staff who work with pupils with SEN.
  • Support and advice to parents/ carers of children who have SEN.

Address:                         S.E.R.C, Newbridge School, 258 Barley Lane, Ilford, Essex, IG38XS