https://www.healththoroughfare.com/medicine/new-study-gives-hopes-to-patients-with-friedreichs-ataxia-a-rare-genetic-disease/15022
In interesting article looking at the impact of fatigue and how the author copes and balances her life. https://friedreichsataxianews.com/2019/02/21/respecting-my-body-despite-friedreichs-ataxia/
https://www.familyfund.org.uk/ The Family Fund is the latest Charity helping families of disabled children
A thought provoking article.
Tjili is dead and has cerebral palsy She was abandoned as a baby Now at the age of 16yrs- she is winning acclaim for her art
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