The Family Fund released a report outlining their findings around sleep deprivation in families who have a child with a disability.
www.downs-syndrome.org have prepared a helpful summary you can download from here;
http://www.downs-syndrome.org.uk/images/stories/DSA-documents/news/Tired_all_the_time_summary.pdf
93% of parents have had to stay up all night with their child.
49% of parents have health issues linked to sleep deprivation.