Muscular Dystrophy - Key Stage 1 support
Resource type:
Frequently Asked Questions —
Date posted:
January 21st, 2012
Number of views:
1544
How can I support students in Key Stage 1?
- Symptoms may not be apparent when the student first starts school.
- Parents will need time and emotional support.
- Newbridge Outreach staff can visit and provide training for staff
- Physio and OT can be approached for further advice
- Consider Statutory Assessment
- Provide alternate / supportive play time activities
- Be aware that cold can have a negative impact
- The condition can be variable, pupils will have good and bad days
- Steroids can be given, this can impact upon weight, physical wellbeing, energy. It is important to know when students are on and off steriods as it can impact on their ability to access school life.
- Consider using disabled toilet - rails and greater space are often beneficial
- Monitor stamina and fatigue, observe and record patterns
- Physical wellbeing can be affected by tiredness and minor infections such as colds and coughs.
- Introduce keyboard skills as early as possible.
- Encourage students to express themselves and not become passive
