Redbridge SERC

Agenesis of the Corpus Callosum

Description

Agenesis of the Corpus Callosum (ACC) is a birth defect in which the structure that connects the two hemispheres of the brain (Corpus Callosum) is partially or completely absent.

'Agenesis' means absent. The Corpus Callosum is the largest fibre tract in the central nervous system.

ACC is a spectrum of disability ranging from some pupils who are mildly affected to pupils who have severe special needs.

Fact sheets

Training / Help

Contact the following services for help and support

  • Newbridge Outreach
  • Hatton Outreach
  • SERC
  • SALT
  • Roding Outreach
  • Joseph Clark

Videos

Screenshot for video: Agenesis Corpus Callosum film

Agenesis Corpus Callosum film

A two minute clip explaining the condition.

Screenshot for video: Corpus Callosum

Corpus Callosum

A short film explaining the role of the  Corpus Callosum

Screenshot for video: ACC awareness film

ACC awareness film

A positive film aimed to increase the awareness of ACC.

Lesson Resources

ACC Teaching Resources and further links

A long list of teaching resources and website links.

Illustrations

Agenesis Corpus Callosum

Agenesis Corpus Callosum

Brain image of Agenesis Corpus Callosum.
Full Size image

Frequently Asked Questions

  • What are the associated difficulties with ACC?
    • Visual impairment
    • Hypotonia
    • Poor motor coordination
    • Delays in motor milestones
    • Low perception of pain
    • Delayed toilet training
    • Early difficulties with chewing/ feeding/ swallowing
    • Seizures
    • Learning difficulties
    • Spasticity
    • Pupils with ACC can have difficulties with social interaction, and are sometimes misdiagnosed as having Autism.
  • What are the educational implications for students who have Agenesis Corpus Callosum?
    • General learning difficulties
    • Social skills group and friendship groups
    • Seek support for visual impairment from Joseph Clark Service
    • Seek support for hearing impairment from Roding Outreach Service
    • Identify individuals own learning style- strengths and weaknesses
    • Pre teach vocabulary and provide subject specific word banks
    • Support fine and gross motor needs with specific interventions
    • Support recording needs with ICT.
    • See web links for further ideas to support learning
  • What is the rate of occurance of ACC?

    There is currently some controversy over the statistics.

    In 2008 in the USA found that 1.8 per 10,000 babies were effected.

    The incidence of ACC effecting boys and girls is roughly equal, although the underlying cause may be different.

    Callosum abnormalities are more common in children who have learning and developmental difficulties.

Family Resources

Contact a family

Website: 
http://www.cafamily.org.uk/
Description

A UK wide charity providing advice, information and support to parents of all disabled children. 

A collection of different holidays for children who have a physical/ learning disability or medical

Website: 
http://www.disability-grants.org/holiday-grants-disabled-children.html
Description

A great link to a collection of opportunities for supportive holidays, grants and adapted accomodation.

This link has a range of different opportunites listed and who is eligable to apply.

Using this link will save you hours surfing the net.

Riding for the Disabled Association (RDA)

Phone: 
0845 658 1082
Email: 
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Website: 
http://www.rda.org.uk
Description

Links to local groups that provide horse riding opportunities for your child, from simply stroking a horse to having proper riding lessons.