Marfan UK is not so much to inform people medically about Marfans syndrome, but to create a social enviroment for people with marfans syndrome to discuss their problems regarding this …
A great 4 page fact sheet summarising key facts and where to go for help and support.
A UK wide charity providing advice, information and support to parents of all disabled children.
A great link to a collection of opportunities for supportive holidays, grants and adapted accomodation. This link has a range of different opportunites listed and who is eligable to apply. …
Independent support across all areas including education, health and social care-specific to disabled children
All areas of benefit entitlement accessible from here including employment, benefits, carers’ benefits, blue badge and much more.
Independent parental education support service.