Redbridge SERC

All Resources
Marfan Syndrome   ( Remove category)

Marfan Association

Family Resources

A great 4 page fact sheet summarising key facts and where to go for help and support.

Marfan’s syndrome

Illustrations

Screenshot of video: Marfan’s syndrome

Shows children and teens who have Marfan syndrome. (Photos generously provided by Rick Guidotti/Positive Exposure and Timothy D. Joyce)

Hypermobility & Marfan Syndrome

Videos

Screenshot of video: Hypermobility & Marfan Syndrome

A woman with Marfan Syndrome who has hypermobile joints.

Lucy Hunter - An article in The Independent.

External Resources

An article about Lucy Hunter who has Marfan Syndrome and she also has two children who have the same syndrome.

Personal view of Marfan Syndrome

Videos

Screenshot of video: Personal view of Marfan Syndrome

PSA featuring Anthony Rapp, star of the original Broadway and film productions of RENT. RENT creator, Jonathan Larson, died of an aortic dissection, thought to have been caused by Marfan …

A selection of photo’s of children and teens who have Marfan Syndrome

Videos

Screenshot of video: A selection of photo’s of children and teens who have Marfan Syndrome

Shows children and teens who have Marfan syndrome. (Photos generously provided by Rick Guidotti/Positive Exposure and Timothy D. Joyce)