A great 4 page fact sheet summarising key facts and where to go for help and support.
TfL have recently introduced a badge to help Adults and Children who may have difficulty standing/ waiting on all TfL transport. It is designed to be supportive for hidden disabilities …
A UK wide charity providing advice, information and support to parents of all disabled children.
A great link to a collection of opportunities for supportive holidays, grants and adapted accomodation. This link has a range of different opportunites listed and who is eligable to apply. …
Shows children and teens who have Marfan syndrome. (Photos generously provided by Rick Guidotti/Positive Exposure and Timothy D. Joyce)
Shows children and teens who have Marfan syndrome. (Photos generously provided by Rick Guidotti/Positive Exposure and Timothy D. Joyce)
A woman with Marfan Syndrome who has hypermobile joints.
An article about Lucy Hunter who has Marfan Syndrome and she also has two children who have the same syndrome.
PSA featuring Anthony Rapp, star of the original Broadway and film productions of RENT. RENT creator, Jonathan Larson, died of an aortic dissection, thought to have been caused by Marfan …