The UK based Rubinstein –Taybi Syndrome Support group. The website contains lots of information and links.
National organisation for those with a severe learning disability and associated behavioural issues
All areas of benefit entitlement accessible from here including employment, benefits, carers’ benefits, blue badge and much more.
Independent parental education support service.
Learning to Speak at Age 18 with a Sister Who Never Quits (Rubinstein-Taybi Syndrome)
Independent support across all areas including education, health and social care-specific to disabled children
A medical explanation of RTS by DrChetana Sachidanandan including information on current research.