The UK based Rubinstein –Taybi Syndrome Support group. The website contains lots of information and links.
Learning to Speak at Age 18 with a Sister Who Never Quits (Rubinstein-Taybi Syndrome)
Independent support across all areas including education, health and social care-specific to disabled children
National organisation for those with a severe learning disability and associated behavioural issues
All areas of benefit entitlement accessible from here including employment, benefits, carers’ benefits, blue badge and much more.
Independent parental education support service.