The UK based Rubinstein –Taybi Syndrome Support group. The website contains lots of information and links.
Learning to Speak at Age 18 with a Sister Who Never Quits (Rubinstein-Taybi Syndrome)
All areas of benefit entitlement accessible from here including employment, benefits, carers’ benefits, blue badge and much more.
Independent support across all areas including education, health and social care-specific to disabled children
Independent parental education support service.
National organisation for those with a severe learning disability and associated behavioural issues
A medical explanation of RTS by DrChetana Sachidanandan including information on current research.