The UK based Rubinstein –Taybi Syndrome Support group. The website contains lots of information and links.
National organisation for those with a severe learning disability and associated behavioural issues
Independent support across all areas including education, health and social care-specific to disabled children
All areas of benefit entitlement accessible from here including employment, benefits, carers’ benefits, blue badge and much more.
Support for those with or caring for someone with a learning disability. Also provides advice on wills and trusts
Independent parental education support service.